Conquering Diseases

Data Collection Study For Patients With Duchenne Muscular Dystrophy

Description

This study is intended to collect data from medical records on patients who have Duchenne Muscular Dystrophy

Overview

This is a data collection study that will allow researchers to gather information to better understand Duchenne Muscular Dystrophy . Examples of data collected form medical records include descriptions of muscle function, lab results, dexascans, and outcomes in response to treatment.

What we're hoping for

We are hoping that the information gathered by this study may be used to help improve identification and treatment of children with dystrophin disorders. Examples of data collected form medical records include descri

Additional Information

ClinicalTrials.gov Identifier: Not Available

 Principal Investigator

Brenda  Wong, MD

UMass Memorial Health Care

 Study Contact

Sarah  Figueira

508-856-1604

sarah.figueira@umassmed.edu

 Location

UMMS University Campus

55 Lake Ave North 

Worcester,MA 01655

508-856-8989