This is an observational study of patients with cystic fibrosis. Any patient diagnosed with cystic fibrosis can participate.
The purpose of this study is to have a national database of information about patients with cystic fibrosis and to look at things that prolong their life and improve their quality of life. There are no extra tests or visits required to participate in this study. All information collected is gathered from the notes of routine office visits, sick visits, hospitalizations, and routine tests during the course of standard care.
What we're hoping for
We hope that the data we gather will help improve the care and quality of life of patients with CF.
ClinicalTrials.gov Identifier: Not Available