Conquering Diseases

Cystic Fibrosis Patient Registry


This is an observational study of patients with cystic fibrosis. Any patient diagnosed with cystic fibrosis can participate.


The purpose of this study is to have a national database of information about patients with cystic fibrosis and to look at things that prolong their life and improve their quality of life. There are no extra tests or visits required to participate in this study. All information collected is gathered from the notes of routine office visits, sick visits, hospitalizations, and routine tests during the course of standard care.

What we're hoping for

We hope that the data we gather will help improve the care and quality of life of patients with cystic fibrosis (CF)..

Additional Information Identifier: Not Available

 Principal Investigator

Ted  Kremer, MD

UMass Memorial Health

 Study Contact

Jaclyn  Longtine



UMass Chan University Campus

55 Lake Ave North 

Worcester,MA 01655