Conquering Diseases

Registry To Better Understand Hemophilia And Bleeding Disorders


Seeking people with a bleeding disorder such as Hemophilia or Von Willebrand Disease for a registry to collect health data to address the needs and challenges of people living with bleeding disorders.


Participants in this registry agree to share their health information and provide at least one blood sample to be tested for factors that may cause bleeding disorders and for infectious diseases.

What we're hoping for

This registry is collecting health information from children and adults with a blood disorder such as Hemophilia or Von Willebrand disease to prevent and reduce health complications.

Additional Information Identifier: Not Available

 Principal Investigator

Doreen  Brettler, MD

UMass Chan Medical School

 Study Contact

Jennifer  Feldman


UMass Chan University Campus

55 Lake Ave North 

Worcester,MA 01655