Conquering Diseases

Natural History Study For Rare And Ultrarare Neurological Diseases

Description

Seeking people who have a diagnosis of a rare or ultrarare neurological disease.

Overview

The main purpose of this study is to collect information about the participant's disease. We want to learn more about the participant's disease to find better treatments in the future.

What we're hoping for

We will study how the disease changes over time and look at things like genes, the environment, and treatments.

Additional Information

ClinicalTrials.gov Identifier: Not Available

 Principal Investigator

Eleonora  D'Ambrosio, MD

UMass Memorial Health

 Study Contact

Danielle  Kokoski

danielle.kokoski@umassmed.edu

 Location

UMass Chan University Campus

55 Lake Ave North 

Worcester,MA 01655

508-856-8989