Seeking people diagnosed with Chronic Fatigue Syndrome, Long COVID, Chronic Lyme, Fibromyalgia, Gulf-War Illness, Hypermobile EDS or Hypermobility Syndrome, Postural orthostatic tachycardia syndrome (POTS),or Orthostatic Intolerance for a study collecting blood, urine, saliva and skin tissue.
Seeking adults aged 18 and older who either have Facioscapulohumeral Muscular Dystrophy (FSHD) or are healthy volunteers for a study to identify genetic biomarkers for the disease and better understand what causes it, and why symptoms vary widely among people who have it.
Seeking men and women whose doctor has recommended surgery to relieve pain resulting from damage to a disc in their back being pushed out of place (herniated) for a study of an investigational device to prevent the disc from reherniating.
Seeking adults with degenerative spondylolisthesis with lumbar spinal stenosis whose doctors have recommended back surgery to address the pressure on your spinal cord or spinal nerves
Seeking boys aged 2 and older with Duchenne Muscular Dystrophy who have been prescribed Vamorolone (Agamree) for a study of the long-term safety of the drug.
Seeking adults who have had low back pain for at least 3 months for a study of whether things such as activity levels, sleep, heart rate, or emotions impact how their pain responds to mindfulness treatment.
Seeking boys aged 6-14 years old who have previously been treated with adeno-associated virus (AAV) based gene therapy for a study of an investigational drug
Seeking men and women with Psoriatic Arthritis which has not responded to an initial type of treatment for a study comparing whether switching to a different type of treatment is the same, better, or worse.
Seeking boys aged 4 to 16 for a study of an investigational drug to increase dystrophin protein levels in muscles.
Seeking men and women whose active systemic lupus erythematosus (SLE) is being treated with non-biologic therapy for a study of an investigational drug.
Seeking men and women whose rheumatoid arthritis has not responded to TNF-biologic treatment for a study comparing two different types of treatments (non-TNFi-biologic and tsDMARDs).
Seeking boys and men with Duchenne muscular dystrophy (DMD) or Becker Muscular Dystrophy (BMD) to provide samples including blood, plasma, serum, urine, as well as the remainders of tissue samples collected as part of their usual clinical care for a biorepository.
Seeking male participants aged 10-21 years of age who have been diagnosed with Duchenne Muscular Dystrophy (DMD) for participation in an imaging study.
Seeking men and women whose broken arms or legs will need to be treated with surgery for a study of what treatment practices best prevent infection.
Seeking adults who have inflammatory arthritis and who are willing to provide data by answering questionnaires, giving a blood sample and donating leftover tissue samples for a study to help researchers better understand inflammatory arthritis.
This study is intended to collect data from medical records on patients who have Duchenne Muscular Dystrophy
This is a registry to collect medical record information from people living with Multiple Sclerosis (MS) to better understand the disease and develop new treatments